S’porean with muscular dystrophy dies aged 38, a month after father dies from cancer
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S’porean with muscular dystrophy dies aged 38, a month after father dies from cancer

Duchenne Muscular Dystrophy patient Edwin Chew dies aged 38

Edwin Chew, a 38-year-old who suffered from a rare condition called Duchenne Muscular Dystrophy, has died in hospital, Shin Min Daily News reported.

Source: Shin Min Daily News

Mr Chew’s father had also died from cancer just a month earlier, leaving behind his wife.

Despite his lifelong adversity, Mr Chew worked to improve himself, even teaching Malay and writing a book.

Edwin Chew, who had muscular dystrophy, dies aged 38

Mr Chew was diagnosed with the rare condition early in his life. When he was five, he was told he would not live to see adulthood.

Since he was 10 years old, he had to be in a wheelchair, and for 20 years, he has been bedridden.

For many years, Mr Chew weighed less than 30 kg and was unable to hold a pen or eat. He also required the assistance of a ventilator to breathe.

Mr Chew wasn’t even expected to live past the age of 30.

But he never stopped working and became skilled at manoeuvring a computer using his eyes to control the mouse cursor.

From there, he created videos, taught himself Malay, and even wrote an autobiography.

Did not want to be re-admitted to hospital

Mr Chew’s mother told Shin Min Daily News that her son had been admitted to the hospital for a week after suffering from coronary heart disease two weeks ago. He was thereafter discharged from the hospital and refused to be re-admitted.

This was his first incident of coronary disease.

Furthermore, his muscular dystrophy had led to weak organs and bones, and the illness hit him hard after this incident.

On 2 May, the family helper noticed that Mr Chew did not respond to her calls, and they called for help.

He was pronounced dead by medical staff.

Father passed away just a month earlier

Mr Chew’s mother has lost both her husband and son within the span of just two months.

Source: Shin Min Daily News

Her husband was diagnosed with cancer last year and passed away a month ago.

When asked about her being left alone, she held back tears and said: “It’s okay, this illness was very painful for him, and this is also a relief.”

Mrs Chew is wheelchair-bound after sustaining a fall eight years ago. She revealed that she also has mild muscular dystrophy.

She said she still has relatives like her brother and sister, and she also has her helper to take care of her at home.

Also read: Terminally ill taxi driver refuses treatment, hosts banquet at Pan Pacific S’pore to honour mother instead

Terminally ill taxi driver refuses treatment, hosts banquet at Pan Pacific S’pore to honour mother instead

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Featured image adapted from Shin Min Daily News.

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